It's been almost 7yrs. since the day that God decided to send me a precious gift. On January 15th, 2003 my beautiful daughter came into this world. And for a brief moment it seemed the world had stopped turning. After so many yrs. of failed attempts of trying to be parents we finally had our baby girl.
Soon after her dramatic birth (emergency c-section) we were told that she was extremely jaundice and needed to spend a few days in the NICU on lights...2 wks. later we were back with an RSV diagnosis...and then the snowball started growing...for the next 6yrs. we have been in and out of the Dr.'s office and hospitals. Symptoms growing and changing on a month by month and yearly basis. Tests, tests, and more tests...but no answers. Everyone is baffled on why this child is so sick with everything in infancy from respiratory problems, weight gain, stomach issues, constant battles of pneumonia to now in childhood with adding leg and back pain, migraines, sleep issues, seizures, and severe anxiety.
But finally with this new intense treatment I have seen the "light"!!! And it is a joyous time to say the least! We have had a few set backs but I refuse to take away from any progress that this child has made! It is if she has been waiting for this moment to finally be able to "speak" to wake up and not be weighted down with anxiety or sickness. She is quiet and passive...but this child is a fighter. She wants to get better...she reminds me about giving her medications...she does her exercises everyday...she is eager to go to therapy! I believe that she knows this is what is finally helping and she wants to get better to find that normalcy that she sees her peers having.
For those of you who have not had the chance to love on a special needs child let me just say that after watching a child struggle to communicate for so long and to finally find their voice...it's indescribable.
My butterfly is finally finding her wings. We still have a journey but the end is in sight and the potential of my beautiful daughter is finally showing and even though I always new it was there it is just breathtaking to see.
I am honored that God chose me to mother this child. He knew that I had the grace and love to give to her. His plan. His time. If Kambry never grows out of this...I know we will still be ok...because of Him. He will guide us and empower her to find strength in all that can make her weak. The fact that my child knows Christ and knows of His love...is the best "tool" or "medicine" that I can ever give her.
So if you see my beautiful little girl and she flashes you a smile feel free to finally smile back. My days of constantly trying to get people to not engage her is over. She still has her bad days but don't we all. In the last wk. I have seen her talk to friends and family that she has struggled to make eye contact with.
Thank You for the prayers!!! This is God's work and I am truly grateful.
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